Community Message Board
July 31, 2007
In the areas where you have psoriasis, which gives you the most grief?
We have attended a few consumer shows over the past year, including LifeFest and Women’s Health Matters in Toronto. People often tell us that their scalp psoriasis bothers them most. As we can see from the last post, scalp psoriasis is, indeed, very bothersome.
Posted by Lindsay Peterson, Director, Psoriasis Support Canada
41 Comments

Moi j'ai au coudes, avant bras, une mais, genoux et coté de la jambe. J'ai eu des traitements au rayons 3 fois semaine, j'ai utilisé les crèmes qui sentent le goudron, les crèmes cortisone pas de résultat pour moi! J'ai tout arrêté depuis quelques années. J'ai commencé à faire du psoriasis vers l'âge de 38 ans, j'en ai présentement 43.
D C - August 1, 2007 at 14:52

Yes indeed, psoriasis in the scalp area is very bothersome mostly because it is noticeable. But in the last 3 years, the plaques of psoriasis around my mid-section had worsened, merging as one large mass. It's makes it very painful to move around because it would crack the skin or snag on my clothes. Ouch!
C T - August 1, 2007 at 21:02

Elbows and knees - not so much painful as it is unsightly - especially in this humid weather. I've just learned to suck it up!
L P - August 3, 2007 at 09:21

The place where have the most grief is my right knee. I have developed Psoriatic Arthritis. I have been told that 30% of psoriasis suffers get this Arthritis.
R T - August 4, 2007 at 00:34

I find that the psoriasis on my palms is very painful. The skin also cracks and snags.
S D - August 5, 2007 at 03:12

Yes I have it on my feet, started with one toe and in 5 years has spread to both feet, up as far as the ankles; very painful to wear shoes.I do use a lotion from Freemam called Bare foot it has peppermint in it an it will stop the burning.
J R - August 6, 2007 at 06:37

Hello to all,
As for me, the worst places for my psoriasis are on my face and in my ears. When I get a flare-up, I find it very uncomfortable, the itching, swelling, redness and dry skin is sometimes enough to drive me mad. I also learned that the more I let it bother me, the more it does. I also have it on my scalp but I usually have this part of it under control, so this is a lot less bothersome than the other regions.
J L B - August 9, 2007 at 15:46

Even more bothersome are lesions in the face and throat. Especially, around the nostrils, eyebrows, jawline and ears; all highly visible. It seems that facial psoriasis is very rare, but hey it does happen. Sun therapy does help to reduce the redness and the scales.
B S - August 10, 2007 at 14:34

Hello,I feel that where my psoriasis is most aggravating is my upper legs and torso, which seems to be the worst of the infection.I am currently affected from the lower abdomen to the upper feet.
m g - August 11, 2007 at 22:52

Under my nails.
t I - August 12, 2007 at 01:32

I have experienced scalp, torso, genital and buttock plus palm psoriasis. Without a doubt, the most troublesome is the palmar psoriasis as it is painful, impossible to hide and affects you socially.
S B - August 14, 2007 at 12:52

Je suis affectée de psoriasis au cuir chevelu. Je viens tout juste d'essayer le médicament Dovonex, cependant je trouve que le produit est excellent pour le reste du corps mais moins pratique pour le cuir chevelu dû à l'épaisseur du produit. Je serais intéressée à obtenir vos suggestions vis-à-vis des produits qui traitent mieux le psoriasis au cuir chevelu.
G M - August 16, 2007 at 14:10

I have psoriasis on my right hand and down one finger now I have psoriatic arthritis. I also have psoriasis on my ankles, side of my right leg, on both legs just below the hips, on my elbows and on my left hip and a small patch just above my belly button, and on my knees and a big patch up above my right knee. I also have it on the back of my scalp. When I get really hot and sweaty my scalp gets really itchy.
v d - August 22, 2007 at 20:21

Hello, I have psoriasis in different places, but the worst is on my hands, can't hide that!
S P - August 30, 2007 at 20:37

Aux parties génitales car c'est ça pique intensément et c'est plus difficile à traiter étant un endroit humide et non exposé...
J P - September 4, 2007 at 09:02

My ear is the worst feeling, the itch drives me crazy and so the scratching makes me look crazy, laugh. The eyebrows bothers me and seems to flake worst but is less noticeable than the spots on my hands. Prescription creams do seem to help but remembering to put it on before leaving the house is something else (denial I guess).
C B - September 7, 2007 at 02:20

I have been hearing about Skin Zinc and am wondering if anyone has tried it and if it gives results. I've tried numerous things and am tired of just wasting money on stuff that only claims to help, but does not.
C B - September 11, 2007 at 00:48

Scalp too! I forgot to mention scalp. It's really been bothering me lately with all the weather changes in Ontario.
Skin Zinc...yes. Heard lots about this on the radio. I have never tried it but having psoriasis for twenty some-odd years, I've learned that these gimmicky products don't usually work for me. That being said, if people have had success with it, I'd love to know!
L P - September 13, 2007 at 14:50

I only have psoriasis on my ankles. It gets worse when I sweat. The sun works wonders. Mazon soap also works better than the $100 creams.
d - September 21, 2007 at 23:48

I read the Science Daily article (July 19/07) and it basically says that is our own fault when medications do not work. (Bull) Poor medications, poor understanding by doctors, and assuming one type of medication will work for EVERYONE, every time, without accepting the fact our bodies are all individual, constantly changing + hormonal levels fluctuate; cancelling out the efforts of a medication. Written by a doctor that blames the patient for being sick. (dealt with a few of those) I do NOT enjoy or benefit from having psoriasis.
C B - September 22, 2007 at 01:46

The largest area, which is 6 inches below my right side of my chest. It throbs. The ones on my thighs as well, because my clothes rub on them.
P B - September 22, 2007 at 19:33

Les pires parties pour moi ce sont mes coudes. J'ai de grosses plaques et quand c'est très humide ou très sec mes plaques fendent et j'ai de la difficulté a plier mes bras. OUCH OUCH OUCH
C L - September 23, 2007 at 22:41

I have it on my hands.
Fingertips that can't always grip things or are so painful that touching anything is enough to bring tears to one's eyes.
The cracking and splits that occur just using them on a daily basis make things even harder to manage. I have tried all sorts of creams and salves from prescription to herbal and I can only seem to get limited relief.
T S - September 24, 2007 at 10:43

I have had it on my hands, buttocks and feet. It is now only on my feet, but I am covered from the ankles down. Someone mentioned a lotion from Freeman called Bare foot. Please let me know where to get this as I understand your comment about the burning. I'd also love to hear if anyone has had success with Skin Zinc. I haven't tried it but I am interested in hearing from others who have.
R H - September 24, 2007 at 16:02

I have it on my elbows and on both legs in various spots, especially below the knees. I too saw the infomercials on Skin Zink and ordered a round. It did give me some relief for a while. when it flared up again i went back to it again, with no positive effects the second time around.
I have heard people talking about changes in their diet having positives effects and I would be interested in hearing more about that.
R H - September 26, 2007 at 23:38

I have it all over so I think it all bothers me especially tender areas when it itches. The scalp is lousy because when it flakes it lands on eyebrows or glasses and others think
you have terrible dandruff. I have had it for 18 years one never gets used to it because something always flares up.
c g - September 29, 2007 at 21:48

I have psoriasis inside and outside of my ears, on my elbows, buttocks, all over my back, breasts, both legs, the most bothersome is on my back.
I noticed that by avoiding citrus juice like oranges and juices and avoiding wheat seems to be less severe.Lately I am not so careful with my eating habit and I have more flare-ups. Really stress is the biggest culprit.... how can we avoid stress...
S A - September 30, 2007 at 18:31

The bottom of my feet is the one that bothers me the most. I am past the self conscience state. I don't care who stares at me or what they think.... but when I can't walk because of the pain, that's tough. I found that creams and plastic bags on my feet overnight help.
A M - October 1, 2007 at 18:11

After reading other people's posts, I feel very fortunate in that I only have it on my elbows and a small spot starting on one of my knees.
I was diagnosed 10 years ago with very minor patches on both elbows. It has spread over time and now totally engulfs both elbows, but I can honestly say I'm surprised when someone asks me whats wrong with my elbows. I put my medicated cream on morning and night and forget about it. It also helps that the patches I have, have never been itchy or painful, just ugly.
I do find that after 8 months to a year, I need to try a different topical ointment as I become immune to whatever I'm using. A friend heard somewhere that Hawaiian Tropics dark tanning oil helped and I tried it, so far I have been using it for over a year and my psoriasis has not spread since then and it doesn't look as bad.
G S - October 1, 2007 at 18:57

I was first diagnosed with psoriasis 2 years ago & I am now 58 years old.The very first thing I did when diagnosed was to make absolutely sure from my doctor that it was not in any way contagious, because my first & only grandson was on his way.Today I have fairly severe Plaque Psoriasis on my hands, palms, arms, legs & feet. It really did bother me a lot at first but I decided to carry on with my life. My family & good friends are all aware of what the disease is & make me feel comfortable about it. Having a forum & the information to talk & learn more about this condition is one of the best things I have come across.This summer I will be going back to wearing "T" shirts & shorts & not let the condition control who I am.
D C - February 11, 2008 at 18:58

I would have to say that the most bothersome is when it is on my face and scalp. While I have developed Psoriatic Arthritis in both of my knees and elbows it is when it is on my face that I am most bothered. It actually makes me ashamed to go out in public when it is flared up.
I went one day to pick my kids up at school and a Mom approached me saying that I should go to rehab for my meth problem and that my children would be better off without me in their life. I told her that I suffered from psoriasis and she looked at me like I had leprosy or something. I started to feel the tears well up so I just turned and left the school and went to my Doctor's office. I actually thought about suicide at this point and I felt I needed to talk to someone right away! My Doctor started me on methotrexate and I haven't looked back since!
My face is cleared up and I went looking for that Mom and told her what I thought about her comment 2 months prior and that she should be ashamed of herself for judging a book by it's cover! I still have the occasional flare-up while I am taking the methotrexate it hasn't been back on my face, so I can go out in public and not feel ashamed anymore! For the first time in a long time I feel in control and not the psoriasis in control! I am looking forward to wearing shorts and t-shirts this summer!
B C - March 26, 2008 at 10:03

I have psoriasis on my shins and calves, thighs, buttocks, stomach, sides and back. Also a little on my elbows and biceps. I was diagnosed with a small spot of psoriasis on my right shin about 10 years ago and it has very slowly gotten worse over time. I am considering light therapy but still must consult my doctor.
S G - June 21, 2008 at 20:22

Hello everyone. I have had psoriasis now for over 20 years. I am now 46 and have guttate psoriasis which is a form of psoriasis that presents in drop-like smatterings all over the skin, as opposed to the large patches associated with plaque psoriasis. The hardest part for me is maintaining my self-esteem. I feel I am an optimistic person but sometimes the sight of my legs in the mirror after a shower overwhelms me and I cry. Or, I feel angry and frustrated....usually following someone's tactless comment (like "that's gross" or "what's wrong with you?"). I am always tempted to snap at them but I never do. I just calmly explain it (while inwardly seething). I recently tried Dovonex but it caused my skin to peel so badly that it made me feel even worse, and I had to cover up more. However, there is a part of me that says, "To heck with it! I'm going to wear whatever I want and if people don't like the way I look, they can look at something else." Generally these feelings of bravery subside after approximately 30 seconds and I quickly grab my long-sleeved blouse on the way out the door. One thing that I know for sure will last, though, is the psoriasis. I've had it for 20 years already and it looks like I'll have it for another 50! (I intend to live for a long time.)
M B - July 12, 2008 at 15:39

Definitely on my face. I am only 22 years old and I've had psoriasis for 17 years. My doctor says that he considers it as being "mild" but to me it's severe because of the emotional effects. This is especially frustrating when I try to get treatments other than topicals because I am not deemed as being severe enough for anything else. This year has been the worst for my face. I get these devastating breakouts on my forehead, around my eyebrows and along my hair line that make me want to stay home from work. I can relate 100% to
"M B" on the first half of that comment.
J G - August 12, 2008 at 22:12

Success story! The most embarrassing and painful area was near the anus...for years I thought I had hemorrhoids or something and then the specialist took one look down there and said I had psoriasis. I was given a few prescriptions to use and I was using a PMS-Desonide cream in that area. Well I recently renewed the prescription and the pharmacist said they were all out of the cream so they put it in an ointment base instead. The anal area has completely cleared up. I can't tell you how happy and relieved I am. Try this if you are a similar sufferer, it sure worked for me.
V M - September 15, 2008 at 11:05

I developed a severe case of psoriasis in the fall of 2002. Anything anyone suggested, I tried. None of the prescribed creams the dermatologist gave me brought any results. I finally went into light therapy at the hospital 3 times a week for a year which cleared my skin and Derma zinc spray relieved the itch. This summer, the psoriasis came back, but so far is not nearly as severe.
I use the Aveeno Oatmeal to bathe in as well as Aveeno bodywash, and I am currently using skin zinc which seems to be helping. I have also changed my diet, eliminating beef, shellfish, and dairy, and I am eating the recommended vegetables and fruits as well as drinking lots of water. I went to see a Chinese Pharmacist who sold me some tea, and some herbs for Psoriasis, as well as some herbs to keep me calm. I have read about the benefits of using Dead Sea Salts, and we have a salt lake here, at Manitou Beach, Saskatchewan. Yesterday I purchased some of the Manitou salt from the lake and took a bath in it this morning and I found I was less red then I usually am after a bath or shower. I am also going to the tanning salon 3 times a week.
This time, I am attempting to be really consistent with what I'm doing with my skin and my diet so I do not have to deal with a dermatologist again, or go through light therapy. I also do not want to take any of the drugs they offer.
My psoriasis is the worst on my legs and genital area and I do have some on my face, hands, feet and scalp. I am using Nioxin shampoo, which I also sometimes use as a body wash which was recommended to me by a friend who is a hairdresser and has psoriasis.
I have ordered Dr. Pagano's "Healing Psoriasis". In my research, several mentions were made of the success of his theories and diet.
Also, in my research, I have found the focus is primarily on drugs and topicals, there is very little regarding diet and the immune system, which I find extremely disappointing, although understandable since usually the primary concern is to clear the skin and control the itching.
I have only just started this process 2 weeks ago, and will post again if I find I have had any success.
A M - October 28, 2008 at 17:14

Je souffre du psoriasis sur les deux jambes.Toutefois étant déjà très médicamenté pour autres choses, je n'ose en prendre plus. Le pire pour moi, est que souvent, durant la nuit surtout, je me gratte tellement que mes draps sont toujours pleins de taches de sang. Alors imaginez la quantité de galle qui me couvrent. De plus, c'est très laid de voir ça. Un bon traitement que j'ai trouvé, pour moi, en tout cas, c'est la lampe solaire, suivie d'un bon bain avec du sel de mer.
R d L - November 16, 2008 at 21:42

I was raised with a saying.... I used to wish for shoes.... till I met a man with no feet...........
Having this for over the past ten years I wish I could say that I've gotten tothe point that it is a non-issue... not so.
Take heart all... you are NOT alone ok!!!
Know it, and the unfeeling comments made by people that ahve NO IDEA ...water off a ducks back!!! ...and yes,,, I have had it on my face...scalp...shins...legs...etc etc
I am tring to do a homeopathic remedy at the mo' and as we know.. anything homeopathic does indeed take time...
I wish all well in every way... know there is a place here that is safe.. and EVERYONE understands.... it's literally been a life-saver for me
Greetings of the season to you all..
Jeannie
J G - November 25, 2008 at 20:53

Every area gives me grief for different reasons, but the rest wouldn't bother me as much if only the top of my back and my face would be clear. The ones on my sides cause me pain when I twist because they all crack and break. The ones on my legs (especially the knees) heat up like a bad sunburn to the point that I can feel it through my jeans. And the ones on my hairline are just annoying.
K S - March 29, 2009 at 22:32

i think for me on my scalp is the worst, around my ears , elbows & knees. also my hands and fingernails and toenails and one big patch on my left shin. i keep it under control using clobetasol 0.05% with sa15% for my scalp every second night. i wet my hair just until it is damp then apply olive oil to the affected area, then wear a shower cap over night then shower next morning with regular shampoo, then dry a little bit until damp. then with a flea comb gently comb out the plaques. I've had psoriasis for 22 years. just try and keep it under control and in check. good luck to all those who are trying new ways to treat this skin disorder.
s m - September 15, 2009 at 17:01

Here's something very strange I think, my psoriasis shows up bilaterally acemetrally It is in the exact same spots as it is on the other side of my body. Chinese medicine dr's have been baffled with this for awhile and any dermatologist says oh that's normal but I mean it's identically even on both sides on the exact same patch of dermis and I am quite covered and certain spots disappear together at the same time with diff treatments eg, I will use cream on one side not the other and they will both disappear and reoccur together weird.
l w - October 22, 2009 at 01:15
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